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Livre Blanc
Funding Environment for Rare Diseases in Low and Middle Income Countries
A global study of the health financing context, challenges and opportunities for rare diseases in LMICs
Dec 15, 2021

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In Low and Middle Income Countries (LMICs), healthcare financing for rare disease patients is a significant unmet need, often due to an under developed public health rare disease funding environment. Understanding the healthcare funding environment maturity of a country can provide valuable insights that can further enable access to rare disease patients. Building upon the global rare disease landscape report, 10 countries were selected (Argentina, Peru, Colombia, South Africa, Ghana, Morocco, Lebanon, Romania, Malaysia, Thailand) to provide a sample of LMICs health systems and their funding environments. Only 3 out of 10 countries had a medium level of public sector rare disease maturity, indicating there is work to be done.

However, the challenge remains to identify funding solutions most appropriate for their health system and the population's needs and how to sustainably adopt them. There is an opportunity for innovation in rare disease funding programs to unlock new sources of funds to improve access. In addition, there is an opportunity for multi-stakeholder engagements in the future where funding programs could be co-created among the different parties interested in strengthening patient access to RD.

Download this white paper, produced by IQVIA and Roche, or visit our dedicated Innovative Funding Trends and Models Thought Leadership page to learn more.

To read the global landscape report on innovative funding solutions for rare disease, click here.

This paper is also available in Spanish.

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